Pod in spanish language in CERMI television

December 22nd, 2009

The Project PoD in spanish language in Canal

 Down Foundation in the following link:

http://www.cermiaragon.tv/

Project closing date.

September 29th, 2009

The Professional training for parents with children with Down Syndrome has come to its end. Tomorrow is the last day of the project but the consortium will remain working until November.

After that every partner involved in the consortium will keep doing and intensive exploitation and dissemination activity in order to distribute the PoD tool.

The Pilot test has brought very positive results and soon will be shared in a post.

The entire partnership will like to thank you all for the interest shown. And even though the project is almost over we still want to invite you to contact any of us in case you have questions or comments.

IASS presented the dissemination and exploitation plan in order to join forces and to coordinate all the partners

September 16th, 2009

The Aragonese Institute for Social Services (IASS) presented at the last transnational meeting hold in Craiova (Romania) the dissemination and exploitation plan in order to join forces and to coordinate all the partners.

 The partners analysed the weak and strong points regarding dissemination and exploitation. They talked about the important dissemination activities carried out by the consortium although strong exploitation activities are needed.

 Francisco Eguinoa did a PPP about exploitation and dissemination plan. He considered that  each country has to explain what specific activities are going to be put into practice in each organisation in order to give sustainability to the project and what are the plans for more copies and how would be them produced.

 One of the measures adopted was that IASS, Down Foundation Zaragoza, o together will keep the website hosting once it expire, in June 2010. There was underlined the fact that keeping on the website the consortium would be keeping on the results dissemination. 

 Each partner has committed itself to promote the project and to disseminate the results during all the next coming events.

Current actions of dissemination and exploitation presented in PoD Fifth Transnational meeting organised by: ALDO-CET Romania

September 15th, 2009

Craiova, 3 – 4 september 2009

 At the last transnational meeting hold in Craiova (Romania), one of the main themes of discussion was the dissemination and exploitation of the project.

Each country explained what they are going to do in order to disseminate and distribute the DVD copies.

- In Greece, KMOP Family and Childcare Centre have 600 copies. They are going to approach maternities and hospitals both private and public, schools and institutions. A social worker will be in charge of arranging these relationships. There would be a national distribution and the delivery costs would be covered by KMOP.

 - In Spain 200 copies will be send to all (52) Down Syndrome organisations over the country, public hospitals, universities (medical and social welfare), and special schools.

Francisco Eguinoa explained that they are looking for a national dissemination plan, counting on the support of the Royal Board on Disability, as a way of having more copies and assuring an important network distribution.

 A big work on dissemination and distribution was done in Dublin, at the 10th World Down Syndrome Congress hold in August 2009, as about 50 copies were distributed among important entities related to Down syndrome.

There are 150 copies left that will be distributed among Aragonese Institute for Social Services (IASS) and Down Foundation Zaragoza.

 - In Romania, they hold 150 copies. They would send 20 copies to 20 organisations that belong to the Romanian Down Syndrome Federation and 30 copies to the three organisations that already took part in the previous WPs of the project (in Oradea, Cluj and Satu Mare, each would receive 10 copies).

 They would produce 500 copies of this informative package. The costs would be covered by this new project. Then, they would develop an awareness campaign in hospitals, public schools, universities of human sciences and medical sciences and NGO for people with intellectual disabilities.  

 - In Italy, they would follow a common strategy with AIPD (Italian Association of People with Down syndrome). 200 copies would be distributed to all local entities owned by AIPD and within the Italian Down Syndrome Federation. They already have 80 addresses and they would send two copies to each of them. At the end of September, a public presentation of the product will take place in Perugia.

Pilot experience presented in Craiova

September 9th, 2009

The PoD consortium hold its last transnational meeting in Craiova (Romania) on the 3rd and 4th of September. The main themes of discussion were: dissemination, exploitation and the pilot scheme all countries carried out to check the tool.

 In order to carry it out, people who had participated in the needs analysis phase (families and professionals) were invited, by filling in the questionnaire or participating in the focus group, or both.

 At the Pod meeting hold in Rome it was decided that to make just one group with professionals. Down Foundation Zaragoza decided to organize families according to age groups. All the group sessions were hold at the Foundation installations. 

 The group moderator filled out the form sent by ALDO, in order to collect data from the pilot scheme. In addition, Down Foundation Zaragoza made a form for the participants in the groups of the pilot scheme to fill in after the screening of the DVD.

 The conclusions drawn from the data were:

 - High degree of satisfaction.

 - The layout of the content is well structured.

 -         Professionals think that the information provided on the DVD is very suitable, but it is essential that the families have the direct support of professionals.

 -         Images help very much and make contents closer. Some participants request more testimonies from people with Down syndrome.

 -         Dissemination is considered to be very important.

 -         One of the greatest benefits highlighted is the support it provides to parents during the different stages of their child’s life.

 -         Everyone agrees that this material will help to break down stereotypes about Down syndrome and its repercussions.

Dissemination and Exploitation WDSC in Dublin (Ireland)

September 9th, 2009

The 10th World Down Syndrome Congress was hold in August 19th – 22nd 2009 in Dublin, Ireland. The theme for the Congress was “Lifelong Living and Learning”. They chose this theme to stress the fact that people with Down syndrome and their families develop right throughout their lives.

 Marimar Tabuenca was there in representation of the P.O.D team from Down Zaragoza. In the section devoted to “Parent Perceptions & Family Needs”, Liana Maria Vislan presented the project Professional Training for Parents of People with Down Syndrome.

 She talked about its purpose, the tool, and the reasons why the consortium had chosen this media. She confirmed its benefits and how and who made this tool possible. She explained that the PoD DVD is an audiovisual, informative, and testimonial resource consisting of 16 videos distributed in three developmental stages: From 0 to 6 years old, From 6 to 18 years old, and adulthood. She showed a few video sequences.

She also explained that in accordance with the general objective of the study, which was to obtain information from professionals, families, and those with Down syndrome themselves, they gathered up the results in a DVD format, and developed a learning methodology for the universe of our study. Questionnaires were sent out to a large population of each age group, to obtain a larger number of questionnaires and thereby guarantee greater validity in the final results.

 She emphasized that involving different stages in each age group, the families expressed almost the same needs in all the participating countries:

 

The need of good communication between professionals and families.

- The need of coordination between various professionals.

-  The need of specialized and updated training. 

- The need to accompany the family throughout the entire life cycle.

- The need to share their experience with other families.

- The need to take care of themselves as parents.- The need to be aware of the typical evolution and development of Down syndrome respecting the peculiarities of each person.- The need to foster communication between parents and children.

 - They ask for more information regarding health, medical attention to be more highly structured, more time for individual attention and more specialisation in Down syndrome on the part of medical staff.

- The need for clear guidelines on the various stages of their child’s socio-affective development.

-  The need of ideas of how to develop independence.

-  In the adult stages, they call for more information on self-determination and social autonomy.

- The older the children are, the greater is the number of discrepancies that arise with regard to satisfaction with the education.

- The families’ social life is not perceived as being greatly affected.

- It is clear that there is a need to tear down many social stereotypes that have been built up with respect to Down syndrome.

 She also explained that in the CD you could find a list of online resources distributed by country and field. You need just a click on a resource and you go directly to the respective page. In the book, you find different resources available in each country of the Consortium plus one English copy with general information.

 A big work on dissemination and distribution was done in Dublin, as 100 copies were distributed among important entities related to Down syndrome.

It was also explained that the training tool is distributed free of charge, as a whole: DVD, CD and book.

The PoD final tool.

August 26th, 2009

It’s been almost two years talking about the final look of the PoD tool. Finally we the consortium is happy to upload some picture! Check it out.

Complete pack.

Complete pack.

Packaging

Packaging

PoD pack: Book, CD and DVD

PoD pack: Book, CD and DVD

Last trans national meeting.

August 20th, 2009

The PoD consortium will held the last trans national meeting in Craiova (Romania) on the 3rd and 4th of October.

During the last meeting, the PoD consortium will discuss future collaborations and the future dissemination and exploitation strategy of the PoD tool. But the hottest topic will be the pilot experience. Carried out during the summer holidays the consortium will put in common the experiences with parents and professionals.

The tool is produced and tested and just a few things are left before closing up the project.

Last trans national meeting.

August 20th, 2009

Title: Last trans national meeting.
Location: Craiova (Romania)
Description: Last PoD meeting to discuss: dissemination, exploitation and pilot experience.
Start Date: 2009-09-03
Start Time: 09:00
End Date: 2009-09-04
End Time: 13:00

PoD and the MEDEA Awards

August 3rd, 2009

Medea AwardsThe PoD consortium will present the project tool in the MEDEA Awards 2009. After the success of the project and the official presentation in the World Down syndrome congress that will take place in August 2009 the MEDEA Awards brings antoher oportunity to disseminate the project.

The application will be submitted in September and results will be expected in November.

The aim of the annual MEDEA Awards is to encourage innovation and good practice in the use of media in education. Their purpose is to recognise and promote excellence in the production and pedagogical design of media-rich learning resources at all levels of education, and to highlight good practice in the use of media and video in the classroom.